Big questions about big data: Social and ethical implications of using real-world data in the public and private sectors


Wednesday, May 29, 2019
Matrix Hotel, Edmonton, AB

Until fairly recently, the only ‘big data’ applications we saw were from established data linkage groups which had solid policies and procedures for ensuring ethical conduct. Increasingly, we are seeing a range of new developments – researchers working outside those large groups who want to link their own small research or clinical data with public population datasets and private sector clinical research organisations (CROs), pharmaceutical companies and device manufacturers who want to link their own data with other public and private population datasets. Outside of the health sector, educational and social care organisations are also discovering that data linkage can facilitate rigorous evaluations of their own programs.

Join Prof Annette Braunack-Mayer for an engaging talk on the social and ethical issues related to the collection and use of real world data to inform private and public health and social care decisions. Prof Braunack-Mayer will describe some of her current projects about these issues and the challenges they perceive for the future and the policy environment around data linkage.

Presenter

Prof Annette Braunack-Mayer profile pictureProf Annette Braunack-Mayer, Head of School, School of Health and Society, Faculty of Social Sciences, University of Wollongong

Prof Braunack-Mayer is a bioethicist and public health researcher. Her research combines ethical analysis with a wide range of qualitative methods for engaging with citizens, patients, consumers and stakeholders. She has particular expertise in the use of deliberative methods of engagement with communities, but her research skill set extends across qualitative research and includes the incorporation of insights from quantitative research. She has led community engagement activities with citizens, patients and stakeholders across 10 funded projects, combining methods including citizens’ juries, in-depth interviews, focus groups, participant and non-participant observation, document and media analysis. Her current research spans vaccination policy and programs, the appropriate use of big data, obesity prevention, and chronic disease prevention in Aboriginal and Torres Strait Islander communities.

Event Details

Date: Wednesday, May 29, 2019
Time: 12:00 p.m. – 1:30 p.m. MT
Venue: Amber Room, Matrix Hotel
Location: 10640 - 100 Ave NW, Edmonton (Map link)

Please note: A light lunch will be served at this event.

Registration

Registration is required as seating is limited. Please click the following link to register for this event:
https://bigquestionsbigdata.eventbrite.ca